Jeff Kinney

Virtual Event with Jeff Kinney and Jake Marrazzo on December 14

Jeff Kinney BroadcastPostscript: Jake had a great time talking with Jeff Kinney on December 14, 2020. Watch it on Facebook Live or YouTube!

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Virtual Event Jeff Kinney Jake MarrazzoWe are so excited to announce a special virtual event, as Jeff Kinney, the author of the Diary of a Wimpy Kid book series and owner of the Unlikely Bookstore Bookstore will interview Jake Marrazzo about his new book, One Wants to be a Letter and growing up with Duchenne Muscular Dystrophy on Monday, December 14, 2020, at 7:00 pm. Both Jake’s book and Jeff’s Diary of a Wimpy Kid book series are about being different and finding your true self. One Wants to be a Letter has already sold over 800 copies and a portion of the proceeds from the book sales will go to our foundation which helps families with Duchenne Muscular Dystrophy to make their homes accessible. The One Wants To be a Letter book is currently in stock at the Unlikely Bookstore Plainville, MA.

Please visit the registration page on the An Unlikely Story website to register for free for this special virtual event with Jeff Kinney and Jake Marrazzo.

 

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About Jeff Kinney and the Diary of a Wimpy Kid Book Series
Diary of a Wimpy KidJeff KinneyIn 1998, Jeff Kinney came up with the book idea for Diary of a Wimpy Kid, a story about a middle-school weakling named Greg Heffley. Jeff worked on his book for almost eight years before showing it to a publisher in New York. In 2006, Jeff signed a multi-book deal with publisher Harry N. Abrams, Inc. to turn Diary of a Wimpy Kid into a print series. The first Diary of a Wimpy Kid book was published in 2007 and became an instant bestseller. There are now more than 200 million copies of the series in print worldwide. To date, the online version of Diary of a Wimpy Kid has more than 80 million visits and is typically read by more than 70,000 kids a day. The Diary of a Wimpy Kid series has been a fixture on the USA Today, Wall Street Journal, and Publishers Weekly bestseller lists. The book series has remained on the New York Times bestseller lists since the publication of the first book and the books are currently available in 76 editions in 64 languages.

Jake on the Dr. Phil Show!

Today, Jake and Sheryl Marrazzo appeared on the Dr. Phil Show along with Dr. Freda Lewis-Hall from Pfizer! Jake shared with Dr. Phil that he doesn’t let Duchenne Muscular Dystrophy slow him down and wants to share his positive message with younger children dealing with their diagnosis. Read more about Jake from the website Get Healthy, Stay Healthy. Here are some shots from the show and watch the clip below.


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Futures Conference

Parents Swap Stories at the CureDuchenne ‘Futures’ Conference

Futures ConferenceSheryl, John and Jake shared their story with other Duchenne parents and kids at the CureDuchenne’s Futures conference, held November 3–4, 2018 in Needham, Massachusetts. Jake, now 15, was diagnosed with Duchenne in January 2011, just before his eighth birthday.

“We couldn’t move Jake, so we had chair lifts installed, which insurance didn’t cover,” Sheryl Marrazzo said. “We wanted to put in an elevator, which is very expensive. We’re talking $40,000 or $50,000, and we didn’t have that kind of money in the bank. So we had to tell our story.”

Marrazzo started their own foundation and soon began talking with reporters with local newspapers and TV stations. Read more

Father & Son with Duchenne complete Buzzards Bay Triathlon

Jake’s Dad, John, competed with two other Dads on the Dudes Against Duchenne Team at the Buzzards Bay Triathlon on September 16, 2018. It is a beautiful course right along the ocean in Westport, MA on Buzzards Bay.

The race started with a two mile run with Jake being pushed by John in our Hoyt Chair. Then followed by a fourteen mile bike ride, which included a few hills hills which is a challenge pulling a 112 pound kid and a 30 pound chair! The final leg was a 5K run which John crushed — he was pushing Jake while dealing with a broken handle bar on the Hoyt Chair that we had to take off in the transition area. It was so inspiring that so many of the other participants in the race shouted out words of encouragement to Jake and John during the run. The crowd at the end cheered them through the finish line!
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First Day Using Our New Team Hoyt Running Chair

Yesterday was our first official 5k with our new Team Hoyt Running Chair! It was hot and crowded, but we managed a personal best and beat our last run by 2 minutes!! Jake kept asking me when I was going to go faster!! Did the best I could kid…speed in progress!!! People kept saying I don’t know how you do it (pushing a 35 pound chair and a 110 pound kid) but I know how…I do it 4 Jake & Tyler’s Sake!!