Global walk 4 Duchenne

In the month of September join us and people from around the world as we bring awareness to Duchenne Muscular Dystrophy. As a global community, alongside Duchenne organizations from around the world, we will walk while raising much needed funds to help families living with Duchenne make their homes accessible. You can help spread awareness by virtually walking and sharing on social media. Use the hashtags #globalwalk4duchenne  #walking4jakessake  and tag @globalwalk4duchenne

We also will be fundraising all month to help our families living with Duchenne make their homes accessible! You can go to our Donate page to donate by check, credit card or debit card, and visit our Foundation page to learn about the families we help with accessibility assistance.

College Bound!

Jake successfully finished his freshman year at Wheaton College where he is studying creative writing and film. Being away from home creates different challenges for a person with Duchenne, like the need to hire people that will help with all his personal needs. Here is the crew that got him through!

Jake Wheaton 4E

Read Our Recent Blog Posts

Boston 25 News Visits Hudson for Zip Trip

Boston 25 News Does A Zip Trip To Hudson

Jake was interviewed by Elizabeth Hopkins from Boston Fox 25 when they did a Zip Trip to Hudson, MA. Jake talked about his book, and the lack of accessibility in 2022.
Jake Enters Wheaton College

College Bound

Since my mom shares my entire life on Facebook, I’ve been getting asked lately how I feel about attending Wheaton College. I’m really excited about the opportunity to go but also nervous about moving away from home. It’s a mixture of emotions I call nerve-cited. I’m sure most people feel the same way, but there’s another thing added on that I have to be nervous about, and that is other people taking care of me.
Jeff Kinney Interviews Jake

Virtual Event with Jeff Kinney and Jake Marrazzo on December 14

We are so excited to announce a special virtual event, as Jeff Kinney, the author of the Diary of a Wimpy Kid book series and owner of the Unlikely Bookstore, will interview Jake Marrazzo about his new book, One Wants to be a Letter and growing up with Duchenne Muscular Dystrophy on Monday, December 14, 2020, at 7:00 pm.

Jake featured on the Dr. Phil Show!

Right before the pandemic hit, Jake and his mom were invited to participate on the Dr. Phil Show, sponsored by Pfizer. Dr. Phil shared a clip how Jake likes to perform and inspire other children with Duchenne Muscular Dystrophy. Click the button below to see Jake and his mom on the episode.

Jake’s Story in his Own Words

How the 4 Jake’s Sake Charitable Foundation Got Started
What started as a team name for an MDA Muscle walk in 2013, the 4 Jake’s Sake Charitable Foundation has become a 501(c)(3) charitable foundation whose main purpose is to help families living with Duchenne make their lives more accessible.

What is Duchenne Muscular Dystrophy?
Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy. DMD is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Symptom onset is in early childhood, usually between ages 3 and 5. The disease primarily affects boys, but in rare cases it can affect girls. Muscle weakness can begin as early as age 3, first affecting the muscles of the hips, pelvic area, thighs and shoulders, and later the skeletal (voluntary) muscles in the arms, legs and trunk. The calves often are enlarged. By the early teens, the heart and respiratory muscles also are affected.

WCVB 5 A+ Student

Jake Marrazzo Chosen as WCVB Channel 5 Boston A+ Student

Jake was chosen to be featured as one of WCVB Channel 5 Boston’s A+ Students and was interviewed by Antoinette Antonio. The segment was broadcast on Wednesday, April 10, 2019.

Who We Help

Liam Square

The 4 Jake’s Sake Foundation helps children suffering from Duchenne’s Muscular Dystrophy and their families.

How You Can Help

Jake-Sake-Logo

If you are interested in contributing to our cause, please visit our Donation page.