In the month of September join us and people from around the world as we bring awareness to Duchenne Muscular Dystrophy. As a global community, alongside Duchenne organizations from around the world, we will walk while raising much needed funds to help families living with Duchenne make their homes accessible. You can help spread awareness by virtually walking and sharing on social media. Use the hashtags #globalwalk4duchenne  #walking4jakessake  and tag @globalwalk4duchenne

We also will be fundraising all month to help our families living with Duchenne make their homes accessible! You can go to our Donate page to donate by check, credit card or debit card, and visit our Foundation page to learn about the families we help with accessibility assistance.

Jake successfully finished his freshman year at Wheaton College where he is studying creative writing and film. Being away from home creates different challenges for a person with Duchenne, like the need to hire people that will help with all his personal needs. Here is the crew that got him through!

500 Sold

One Wants to be a Letter Book Has Sold 500 Copies!

When we released the One Wants to be a Letter Book a month ago,…

Jake on the Dr. Phil Show!

Today, Jake and Sheryl Marrazzo appeared on the Dr. Phil Show…

Driving with Duchenne Muscular Dystrophy

Jake turned 16 years-old in January and for most kids his age…

Right before the pandemic hit, Jake and his mom were invited to participate on the Dr. Phil Show, sponsored by Pfizer. Dr. Phil shared a clip how Jake likes to perform and inspire other children with Duchenne Muscular Dystrophy. Click the button below to see Jake and his mom on the episode.

How the 4 Jake’s Sake Charitable Foundation Got Started
What started as a team name for an MDA Muscle walk in 2013, the 4 Jake’s Sake Charitable Foundation has become a 501(c)(3) charitable foundation whose main purpose is to help families living with Duchenne make their lives more accessible.

What is Duchenne Muscular Dystrophy?
Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy. DMD is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Symptom onset is in early childhood, usually between ages 3 and 5. The disease primarily affects boys, but in rare cases it can affect girls. Muscle weakness can begin as early as age 3, first affecting the muscles of the hips, pelvic area, thighs and shoulders, and later the skeletal (voluntary) muscles in the arms, legs and trunk. The calves often are enlarged. By the early teens, the heart and respiratory muscles also are affected.

Jake was chosen to be featured as one of WCVB Channel 5 Boston’s A+ Students and was interviewed by Antoinette Antonio. The segment was broadcast on Wednesday, April 10, 2019.

The 4 Jake’s Sake Foundation helps children suffering from Duchenne’s Muscular Dystrophy and their families.

If you are interested in contributing to our cause, please visit our Donation page.