We are so excited to announce a special virtual event, as Jeff Kinney, the author of the Diary of a Wimpy Kid book series and owner of the Unlikely Bookstore, will interview Jake Marrazzo about his new book, One Wants to be a Letter and growing up with Duchenne Muscular Dystrophy on Monday, December 14, 2020, at 7:00 pm.
Today, Jake and Sheryl Marrazzo appeared on the Dr. Phil Show along with Dr. Freda Lewis-Hall from Pfizer! Jake shared with Dr. Phil that he doesn’t let Duchenne Muscular Dystrophy slow him down and wants to share his positive message with younger children dealing with their diagnosis. Read more about Jake from the website Get […]
Jake turned 16 years-old in January and for most kids his age that means heading down the DMV and getting a driver’s permit. Jake will take a different path to get on the road as it is necessary for him to get a specialized vehicle. These vehicles allow the driver to control the steering, accelerator […]
Jake Marrazzo has become a remarkable 16-year-old sophomore at Hudson High School. Jake has not let Duchenne Muscular Dystrophy keep him from pursuing his dreams of performing on Broadway, driving a car and helping to cure his disease. Recently, he was chosen to be featured as one of WCVB Channel 5 Boston’s A+ Students. Antoinette […]
September 7th is World Duchenne Awareness Day, which aims to raise awareness for people living with Duchenne muscular dystrophy (DMD). In this blog, Jake Marrazzo, a DMD patient and advocate, shares his experience, providing a powerful story of inspiration to anyone who has been touched by this disease and was originally published by America’s Biopharmaceutical […]
PRESS RELEASE September 9, 2018 – Hudson, MA – Hudson resident Sheryl Marrazzo will be competing in the Title 9 Sprint Triathlon in Hopkinton, MA on September 9, 2018 with her 15-year-old son Jake, who has Duchenne Muscular Dystrophy and has been confined to a wheelchair since age 12. Sheryl will compete in the triathlon […]
Yesterday was our first official 5k with our new Team Hoyt Running Chair! It was hot and crowded, but we managed a personal best and beat our last run by 2 minutes!! Jake kept asking me when I was going to go faster!! Did the best I could kid…speed in progress!!! People kept saying I […]
This article was written by Jonathan Phelps in the Metrowest Daily News and published on Apr 29, 2018 at 7:09 PM. HUDSON — During a run along the rail trail earlier this spring, Jake Marrazzo spurred his mother on as she started training for an upcoming triathlon. “Faster,” he said as she pushed him in a mobility stroller. “I want […]
This article was written by Paul Burton and published on WBZ-TV on November 6, 2015 at 6:14 pm. BOSTON (CBS) – Jake Marrazzo, 12, is learning a lot of hard lessons about life but his approach to it is inspiring those around him, especially his substitute teacher Melissa Ansley. “I can’t walk anymore. I originally […]
