Driving with Duchenne Muscular Dystrophy

Jake turned 16 years-old in January and for most kids his age that means heading down the DMV and getting a driver’s permit. Jake will take a different path to get on the road as it is necessary for him to get a specialized vehicle. These vehicles allow the driver to control the steering, accelerator and braking via joysticks. These vehicles are very expensive, well over $100,000 each.

Below is a video of our friend Patrick who lives in Maine. He drives one of these specialized types of vehicles that Jake will need to be able to hit the road. We can’t wait until Jake is driving himself, but we can’t do it without your help. We have begun the campaign to raise money to get a specialized vehicle for Jake. Our next event is the Millennium 5K 4 Jake’s Sake (6th Annual) coming up on Sunday, May 19th and we are looking for adults and kids to sign up as a runner, a walker, a virtual participant, a sponsor and a volunteer.

Jake Marrazzo Chosen as WCVB Channel 5 Boston A+ Student

Jake Marrazzo Chosen as WCVB Channel 5 Boston A+ Student

Jake Marrazzo has become a remarkable 16-year-old sophomore at Hudson High School. Jake has not let Duchenne Muscular Dystrophy keep him from pursuing his dreams of performing on Broadway, driving a car and helping to cure his disease.

Recently, he was chosen to be featured as one of WCVB Channel 5 Boston’s A+ Students. Antoinette Antonio came to Hudson High School to interview Jake. Please watch the interview with Jake below which was broadcasted on Wednesday, April 10, 2019.
Read more

Jake Talks to 1st Year Medical Students at UMass Medical

Jake was asked to be a guest speaker talking to first-year medical students at the University of Massachusetts Medical School (UMMS) on September 12, 2018. He spoke to them about what he thinks makes a doctor world-famous. Jake had them laughing which the students told him was the highlight of their day. One of the student commented on social media, “My classmates and I loved meeting you! Thanks again for sharing your story with us.” Jake shared the good and the bad about being a patient with Duchenne MD, including how he does in school and living his life on a daily basis. We had a great time and were honored to speak to these young people. Good Luck, future doctors!

Hudson Mother & Son Complete Title 9 Triathlon in Hopkinton

HOPKINTON — Just before 8 a.m. Sunday, Sheryl Marrazzo crouches down and places both her hands squarely on the sides of her son’s face and leans in close until both their foreheads touch. just a few short minutes, Marrazzo will be competing in the annual Title 9 women’s sprint triathlon, which she’s done for the last five years. But this time will be different – her son Jake, who was diagnosed with Duchenne Muscular Dystrophy at age 7, will be right behind her the whole time.

After 25 weeks of intense training, Marrazzo pulled 15-year-old Jake for the duration of the race’s swimming, biking and running courses using both an inflatable raft and a special $5,000 running chair.

Continue reading the article “Mother, son complete Title 9 triathlon through Hopkinton” at Wicked Local and written by Cesareo Contreras and please click here to watch our photo and video montage from the Title 9 Triathlon race.

Hudson resident Sheryl Marrazzo and her 15-year-old son, Jake, who has Duchenne Muscular Dystrophy, completed the Title 9 Sprint triathlon through Hopkinton on Sept. 9th

Hudson Mother and Son Raising Money for Specialized Running Chair

HUDSON — During a run along the rail trail earlier this spring, Jake Marrazzo spurred his mother on as she started training for an upcoming triathlon.

“Faster,” he said as she pushed him in a mobility stroller. “I want to feel the wind in my hair.”

As a casual jogger, Sheryl Marrazzo had a quick answer for her 15-year-old son.

“I’m going as fast as I can,” she said.

Jake, a freshman at Hudson High School, has been unable to walk since April 2015 after being diagnosed with Duchenne Muscular Dystrophy in January 2011 — a few days before his 8th birthday. The disease is a genetic disorder characterized by progressive muscle degeneration and weakness, according to the Muscular Dystrophy Association.

Please visit the to read the rest of this article.

Hudson Teacher Helps Student Making Tough Transition

This article was written by Paul Burton and published on WBZ-TV on November 6, 2015 at 6:14 pm.

BOSTON (CBS) – Jake Marrazzo, 12, is learning a lot of hard lessons about life but his approach to it is inspiring those around him, especially his substitute teacher Melissa Ansley. “I can’t walk anymore. I originally could when I was little,” Jake said. Jake suffers from Duchenne Muscular Dystrophy. “Every morning he would say ‘good morning’ with this big smile and I thought if someone like that can be happy every day what do we have to complain about,” Ansley said. Jake’s mother Sheryl Marrazzo says her son is a fighter. “It’s like ALS but in children,” she says. “If you can imagine watching someone you love with all your heart struggle it’s hard wrenching.”

Visit WBZ-TV to read the rest of this article.