Jake was asked to be a guest speaker talking to first-year medical students at the University of Massachusetts Medical School (UMMS) on September 12, 2018. He spoke to them about what he thinks makes a doctor world-famous. Jake had them laughing which the students told him was the highlight of their day. One of the student commented on social media, “My classmates and I loved meeting you! Thanks again for sharing your story with us.” Jake shared the good and the bad about being a patient with Duchenne MD, including how he does in school and living his life on a daily basis. We had a great time and were honored to speak to these young people. Good Luck, future doctors!
HOPKINTON — Just before 8 a.m. Sunday, Sheryl Marrazzo crouches down and places both her hands squarely on the sides of her son’s face and leans in close until both their foreheads touch. just a few short minutes, Marrazzo will be competing in the annual Title 9 women’s sprint triathlon, which she’s done for the last five years. But this time will be different – her son Jake, who was diagnosed with Duchenne Muscular Dystrophy at age 7, will be right behind her the whole time.
After 25 weeks of intense training, Marrazzo pulled 15-year-old Jake for the duration of the race’s swimming, biking and running courses using both an inflatable raft and a special $5,000 running chair.
Continue reading the article “Mother, son complete Title 9 triathlon through Hopkinton” at Wicked Local and written by Cesareo Contreras and please click here to watch our photo and video montage from the Title 9 Triathlon race.
HUDSON — During a run along the rail trail earlier this spring, Jake Marrazzo spurred his mother on as she started training for an upcoming triathlon.
“Faster,” he said as she pushed him in a mobility stroller. “I want to feel the wind in my hair.”
As a casual jogger, Sheryl Marrazzo had a quick answer for her 15-year-old son.
“I’m going as fast as I can,” she said.
Jake, a freshman at Hudson High School, has been unable to walk since April 2015 after being diagnosed with Duchenne Muscular Dystrophy in January 2011 — a few days before his 8th birthday. The disease is a genetic disorder characterized by progressive muscle degeneration and weakness, according to the Muscular Dystrophy Association.
Please visit the Metrowest Daily News to read the rest of this article.
This article was written by Paul Burton and published on WBZ-TV on November 6, 2015 at 6:14 pm.
BOSTON (CBS) – Jake Marrazzo, 12, is learning a lot of hard lessons about life but his approach to it is inspiring those around him, especially his substitute teacher Melissa Ansley. “I can’t walk anymore. I originally could when I was little,” Jake said. Jake suffers from Duchenne Muscular Dystrophy. “Every morning he would say ‘good morning’ with this big smile and I thought if someone like that can be happy every day what do we have to complain about,” Ansley said. Jake’s mother Sheryl Marrazzo says her son is a fighter. “It’s like ALS but in children,” she says. “If you can imagine watching someone you love with all your heart struggle it’s hard wrenching.”
Visit WBZ-TV to read the rest of this article.
Blog and News Posts
- Coping with Duchenne:Parents swap stories at ‘Futures’Conference
- Father & Son with Duchenne complete Buzzards Bay Triathlon
- Jake Talks to 1st Year Medical Students at UMass Medical
- Hudson Mother & Son Complete Title 9 Triathlon in Hopkinton
- I Just Want to Show Other Patients that Anything is Possible
4 Jake’s Sake Charitable Foundation
P.O. Box 238
Hudson, MA 01749
The 4 Jake’s Sake Charitable Foundation helps families who have children with Duchenne Muscular Dystrophy.